Thursday, March 4, 2010

Oh, the Ups and Downs of Autism Recovery

I wonder if this will ever end? Will I ever be able to feed my children food and not analyze their behavior? Before starting the SCD, this was my hope. Now, I rack my brain daily trying to figure out what is going to be the best for my children. Earlier today I pulled Haiden's old testing results out to try and calm my racing thoughts.
Basically, what it comes down to is that he doesn't absorb food correctly (leaky gut), has yeast overgrowth, and elevated levels of lead in his system. So the SCD was suppose to fix the first two issues but didn't. (We need to do chelation for his lead levels but that really freaks me out right now. More to come on that subject.) What makes the most sense is going yeast free...yikes. That is even harder than SCD but as I mentioned before we weren't really following SCD to the T since we couldn't eat all the foods that diet allowed.
So really I'm not for sure what to do. I hate that this has consumed our lives. I hate that we can't go out to dinner. I hate that my children have to take special food with them when we go to our friends. I hate autism.
But I love my children. I love helping my children. I love that my children are healthy.
So I'll stop complaining and start my next plan of action...just have to figure out what that will be.

On a side note, after threatening Haiden with his life (just kidding), he has had three great days at school. We have a smart little cookie on our hands and he knows how to work the system. We took his Wii away and told him until he can make good choices and stop crying all the time at school, he won't be able to play his new football game (yea, the one he was so excited about for his birthday.) Guess what happened the next day? A positive note home and no tears.


  1. Complain away!!! I hate autism too!!! I have wonderful, supportive friends who have only NTs, but no matter how wonderful they are, they don't really get that autism takes over everything!

    We wanted to do SCD to help with yeast, but my guys have another disorder where they need to eat low fat. I am still trying to figure out if it is even possible to eat low-fat on SCD.

    I wish I could do chelation, but I am too afraid. Our problems are now less behavioral, and much more medical. I am so afraid of possibly doing more harm. The same goes for Hbot.

    So glad that you were able to work with Haiden on making good choices. I know you will make the right choices for him to continue down the recovery path.


  2. Betsy, your kind words are so appreciated. I bet you could do low fat SCD it would just be very limited.
    What medical issues are you dealing with?

  3. There ya go mama....way to tackle the situation and figure out what works for your little man

  4. My children have so many issues it is hard to know where to start. We think that they have mito or a fatty acid oxidation disorder. I think there might be many children with autism who have underlying disease.